April 10th 2023

This year’s popular event for those mildly affected by TSC will be in Leicester on Saturday, 22nd April. This year new attendees will be offered a ‘buddy’ who has attended before and can show them the ropes and introduce them to everyone.

Zoë was very nervous at her first meeting, as she says in RARE:

19th April 2015

When I arrived at the hotel, butterflies were starting to flutter in my stomach. I stepped into a small lounge area in the lobby where people were chatting away. Once I spotted a TSA staff member, she introduced me to a fashion degree student . . . He seemed mildly affected by TS too and I felt my insecurities about being accepted fall way. I spoke so freely to Tim and his mum and explained that I had never really spoken to anyone with TS before.

If you or your family are undecided about going, I’m sure that you find that you’ll meet people like you and can share your experiences.

At lunchtime I met some new faces, initiating conversations… ME? I felt fantastic and free. I spoke to another young woman who lived in West London, near where I went to university. We talked about our strengths and weaknesses at school concerning TS.

And, yes, Zoë is in this picture from before the Lockdown, right in the middle, surrounded by friends she’d made in the Outlook community.

You can find out more at tuberous-sclerosis.org/event/outlook-2023