Zoë at Mencap 2016 to 2021

June 30th 2022

Zoë was so proud of her job as a Support Worker at Mencap, helping men and women with learning disabilities and empowering them to lead independent lives. This picture shows that even through Lockdown, when not only were the people she looked after shielding from COVID, she was as well, and although she couldn’t go in and be with ‘Callum’, the man she supported, she phoned him every Tuesday and Saturday afternoon to keep in touch. Here she is ready to make her call.

She was very keen to encourage all the people in the house to develop their independence, and do as much as they could unaided. One driving force behind this was the example set by her schoolfriend, Helen, who suffered from Cerebral Palsy, to achieve as much as she could, and of course, Zoë’s own determination to live her life as fully as possible.

In a letter to Mencap to explain why she couldn’t attend her second interview because of her lung collapsing, she wrote:

Paying attention to how the nurses work with the patients has inspired me even more to help others develop their independence.

She was offered the job, giving her a ‘small glow of happiness inside‘, and then returned to Guy’s to have a planned pleurodesis to stick her lung to her chest wall to prevent it collapsing again. But, due to complications, she was in hospital for most of May, and on writing to Mencap again, they offered put her application on hold without affecting her employment.

Zoë’ wrote: ‘Considering I had that horrible trial shift at that café back in March, the situation now couldn’t have been more different. I felt supported and respected; that my ill health was being taken seriously and Mencap were being patient enough to wait for me to fully recover before they were happy for me to start work.

This shows how supportive Mencap were, not only to their clients, but also to their staff, giving Zoë the opportunity to get that job and be proud of herself as a member of the working world.

As she said, ‘The experience has helped me become more accepting of people with TS, who may have learning disabilities too.’  And it helped her to reach that self-acceptance that she was striving so hard to find.

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Christmas – TSA Virtual Outlook Festive Special 2021

December 10th 2021

This year the TSA Virtual Outlook Festive Special for mildly affected adults with TSC is on Saturday, 11th December from 3.00 to 5.15. For further details, follow this link https://tuberous-sclerosis.org/event/outlook-festive-2021/ Don’t forget your Christmas jumper!

Zoë used to love Christmas and mentions it several times in her book, she also grew to love the Outlook events and I’m sure she would be writing some questions for this year’s quiz. The photo above is of her last year, sitting by her desk where she used to sit when she joined in the Outlook quizzes on a Saturday afternoon.