Rare is available from Amazon, Waterstones, Book Depository, Barnes and Noble, and other major international book retailers.
About the Book
Zoë was a Support Worker for the learning disability charity Mencap for five years and qualified as a counsellor. What many people don’t know is that Zoë had two rare health conditions, Tuberous Sclerosis Complex (TSC) and LAM caused by two connected faulty genes that can affect the brain, skin, kidneys and lungs.
Zoë had a relatively symptom-free childhood but as she entered adulthood, she suffered a life-threatening kidney bleed and multiple lung collapses that took a toll on her mental health. Throughout Rare, Zoë shares her journey of recovery and how she has come to accept aspects of herself that seemed impossible to surmount.
This blog is dedicated to our wonderful daughter, Zoë, who sadly passed away on Easter Monday, 2021, not from TSC or LAM, but from lymphoma and a cardiac arrest just days before her 28th birthday.
Rare: A Journey of Self Acceptance by Zoë Bull 